The girls are doing incredibly well. They have both made some huge advancements in the last couple of days...
Kaylyn is now up to full feedings, and had her picc line removed a few days ago. They have started condensing her feedings now, so instead of getting fed for 24 hours a day, she is fed over a 2 hour period and then an hour off in between. They will continue to condense her feedings until she can tolerate all of her food at once. Kaylyn is now breathing on her own!! She no longer needs the nasal cannula, and is doing very well. She maintains her O2 saturation in the high 90's.
Kylee is almost breathing on her own, she is now on low flow O2 and .25lpm. You really can't go much lower than that, apparently she just needs a little puff here and there. Kylee is still tolerating her Bolus feedings, and we have continued to work on breastfeeding. It is really kind of hit or miss, sometimes she will do it, and other times she will just put my nipple in her mouth and fall asleep.
They both were moved to open cribs yesterday. Kaylyn is doing just fine, Kylee is borderline maintaining her own temperature. They are wrapping up Kylee like a baby burrito to help her adjust.
They are making great progress, at this rate hopefully we will have them home in a few weeks. We are praying for no more set backs, but we will just have to wait and see.
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