One Week Down

Well, as of yesterday the girls are officially one week old. They are doing well, and we are seeing progress in the right direction, but we still have a very long road ahead of us.

Yesterday was a big day for both Kylee and Kaylyn. They both had Cardiac Ultrasounds done to check on their PDA's (the valve that had not closed in their heart at birth). Kylee's is completely closed, and the ultrasound tech said if Kaylyn's was any smaller it would be closed. So for now, they are just going to watch Kaylyn but she does not have to go to children's for surgery as of yet so that is good news. I am guessing they will do a repeat ultrasound in a couple of days.

The results from the Brain Scan that they did on Friday came back, and they are both Normal. I am so thankful for that!!

They both got PICC lines (permanent IV's) placed in their arms today, and this time the PA was successful. This allowed them to take out their UVC (Venus Line) line in both of their belly buttons. All that is left is their UAC (Arterial Line) in their belly button to be removed, and then we should be able to hold them. If everything goes well, they should remove the UAC in a couple of days, or possibly sooner.

On Friday Kaylyn decided she was going to try and give me a heart attack. Not 5 minutes after I got to the hospital, she decided she didn't want to be intubated anymore, and she pulled out her own breathing tube! Luckily the nurse was standing right there and noticed she did it and a whole team of people were at her bedside in seconds. She did turn a little blue, but only for a second until they started bagging her. They decided to go ahead and try CPAP and see how she would do. She has now been on CPAP for over a day and is doing excellent. She's definitely my child, she is already making her own medical decisions at 6 days old! Today her billiruben (sp?) were a little elevated again, so they decided to put her back under the blue lights to keep everything under control. Hopefully, she will not have to be under them for too long because she does not like them.

I just called and spoke with Kylee's nurse, and apparently tonight they had to put her back on the CPAP machine because she was having to work a little harder to breath. She was also a little anemic, so they gave her another blood transfusion. I know that the NICU road has lots of up's and down's, but it is so hard when your kid is doing so well to watch them take a step back. Other than those issues tonight, she has been doing really well and maintaining. Hopefully they will put her back on her Nasal Cannula soon, but I am not in a hurry. I want her to be able to breath comfortably.

So we already have one week down! My life has changed so much in the last week... I love my little girls so much and I can't wait to bring them home with me!! My body is already preparing itself for their homecoming, its 4:30 in the morning and Im awake. Insomnia is rad!